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Death-ability: An online toolkit for carers and practitioners helping people with intellectual disability understand dying and death.
This project is funded under the National Palliative Care Projects, operating under the Chronic Disease Prevention and Service Improvement Fund of the Commonwealth Department of Health for the period 2017 to 2018.
The project aims to increase access to Dying to Talk, the subject of a very successful Australian Research Council Linkage Grant project (2013-2016; http://sydney.edu.au/health-sciences/cdrp/projects/community-living-staff.shtml). Dying to Talk is an empirically evaluated evidence-based teaching toolkit for small-group delivery to disability staff. It aimed to equip staff with methods to teach people with intellectual disability about the end of life.
Death-ability modifies and revises the Dying to Talk content so it can be available in an on-line setting, resulting in international reach, flexible delivery, and a freely available sustainable product. Death-ability will be available at CareSearch (opens in a new window) in mid 2018
The Death-ability research team comprises:
- Professor Roger Stancliffe (University of Sydney)
- Dr Michele Wiese (Western Sydney University)
- Associate Professor Josephine Clayton (HammondCare and the University of Sydney)
- Ms Gail Jeltes (Sunshine)
- Associate Professor Jennifer Tieman (Flinders University and CareSearch)
- Ms Sarah Wagstaff (University of Sydney)