End of Life and Intellectual Disability

Derek Coyle 

       In memory of Derek Coyle (1960 - 2014)
       Image artwork copyright Derek Coyle,
       Artist supported by Sunshine's Community Access Program Art Studio

Research about the experience of end of life by people with intellectual disability is in its infancy.  Researchers from Western Sydney University and Sydney University, together with disability services, and international research colleagues are collaborating on a number of projects about this topic. These projects are united by a common theme: people with intellectual disability, like all members of our society, are deserving of care at the end of life that affirms their value as individuals and honours their presence.

Our current projects are

  1. Palliative Care and Intellectual Disability
  2. Client Death Notification