Out with Cancer

Ussher, J. M., Allison, K., Power, R., Ryan, S., Perz, J., Hawkey, A., Parton, C., Davies, C., Watson, L., McDonald, F. E. J., Anazodo, A., Hickey, M., Robinson, K. H., Boydell, K., Bruce, J., Rae, J., Gilmore, T., & The Out with Cancer Study, T. (2023). Disrupted identities, invisibility and precarious support: a mixed methods study of LGBTQI adolescents and young adults with cancer. (opens in a new window) BMC Public Health, 23(1), 1837.

Ussher, J. M., Ryan, S., Power, R., & Perz, J. and the Out with Cancer Study Team (2023). Almost invisible: A review of inclusion of LGBTQI people with cancer in online patient information resources. (opens in a new window) Patient Education and Counseling, 114, 107846.

Ussher, J., Power, R., Allison, K. A., Sperring, S., Parton, C., Perz, J., Davies, C., Hawkey, A. J., Robinson, K. H., Hickey, M., Anazodo, A., Ellis, C., & Cook, C. (2022). Reinforcing or Disrupting Gender Affirmation:  The Impact of Cancer  on Transgender Embodiment and Identity. (opens in a new window) Archives of Sexual Behavior.

Ussher, JM.,* Allison, K.,*, Perz, J., Power. R., & The Out with Cancer Study Team. LGBTQI Cancer Patients’ Quality of Life and Distress: A Comparison by Gender, Sexuality, Age and Cancer Type and Geographical Remoteness. (opens in a new window) Frontiers in Oncology. 2022; 12:873642. *Joint first authorship.

Ussher, JM.,* Power, R.,* Perz, J., Hawkey, AJ. and Allison, K. LGBTQI Inclusive Cancer Care: A Discourse Analytic Study of Health Care Professional, Patient and Carer Perspectives, (opens in a new window) Frontiers in Oncology. 2022; 12:832657. *Joint first authorship.

Power, R.,* Ussher, JM.,* Perz, J., Allison, K. and Hawkey, AJ. "Surviving Discrimination by Pulling Together": LGBTQI Cancer Patient and Carer Experiences of Minority Stress and Social Support, (opens in a new window) Frontiers in Oncology. 2022;12:918016. *Joint first authorship.

Ussher, JM., Perz. J., Allison, K., Power, R., Hawkey, A., Dowsett, GW., Hickey, M., Parton, C., McDonald, F., Davis, I., Quinn, G., Boydell, K., Robinson, K., Chambers, S. and Anazodo, A. Attitudes, knowledge and practice behaviours of oncology health care professionals towards lesbian, gay, bisexual, transgender, queer and intersex (LGBTQI) patients and their carers: A mixed-methods study. (opens in a new window) Patient Education and Counselling. 2022;105(7):2512-23.

Ussher, J. M., Power, R., Allison, K., Sperring, S., Parton, C., Perz, J., Davis, C., Hawkey, A., Robinson, K., Hickey, M., Anazodo, A. & Ellis, C. (2022) Erasure of identity or gender euphoria: The impact of cancer on transgender embodiment. In: Riggs, D., Ussher, JM, Robinson, K. Rosenberg, S. (opens in a new window) (2022) Trans reproductive and sexual health. London Routledge.

Ussher, JM., Power, R., Allison, K., Sperring, S. and Ellis, C. (2021) Cancer Survivorship, (opens in a new window) The SAGE Encyclopedia of Trans Studies, (opens in a new window) 2021, SAGE Publications.

Ussher, JM, Perz, J, Power, R (2023) Reinforcing or Disrupting Gender Affirmation: The Impact of Cancer on Transgender Embodiment and Identity, Science of Cancer Health Equity for Sexual and Gender Minority (SGM) Communities conference, New York City, October.

Ussher, JM, Perz, J, Power, R (2023) Out with Cancer: Negotiating Cis-Heteronormative Constructions of Cancer and Cancer Care. Society for Menstrual Cycle Research Biennial Conference, July, Washington.

Ussher, JM (2023) Out with Cancer: LGTBQI+ cancer survivorship and care. Invited keynote, ACON Pride awards, Sydney, April.

Power, R. and The Out with Cancer Study Team.  Invited oral presentation, Blood Conference.  Melbourne, November, 2023.

Rae, J., Oliver, L., Power, R., Schuberth, J., and Woods, R. Breast Cancer.  Panel presentation, LGBTIQ+ Women’s Health 2023 Conference. Melbourne, October, 2023.

Ussher, JM., Power, R. and The Out with Cancer Study Team. Out With Cancer: Negotiating Cis-Heteronormative Constructions of Cancer and Cancer Care.  Australasian Sexual and Reproductive Health Conference. Manly, Australia, 18-20 September, 2023.

Power, R. and The Out with Cancer Study Team.  Out with Cancer Study: LGBTQI Cancer Survivorship and Care.  Breast Cancer Trials.  New Zealand (online), 26 – 29 July 2023.

Power, R. and The Out with Cancer Study Team. “Queer people are excellent caregivers, but we’re stretched so very thin”. Psychosocial wellbeing and impacts of caregiving among LGBTQI cancer carers. Carer Knowledge Exchange (CKE) Research Incubator 2023, Making connections: Exploring carer health and wellbeing, Parramatta, Australia, May, 2023.

Ussher, JM. The Out with Cancer Study.  Oral plenary at the 47th Annual Scientific Meeting of the Australian Society for Psychosocial Obstetrics and Gynaecology. Adelaide, February 2023.

Power, R., The Out with Cancer Study.  Oral presentation, PRIDE@UTS, things that flow, Sydney, Australia, February 2023.

Rae, J., Ussher, JM., Perz, J., Allison, K., Power, R. and The Out with Cancer Study Team.  Supporting LGBTQI communities impacted by breast cancer: Results and translational outcomes of The Out with Cancer Study. Australasian International Breast Congress (AIBC), Brisbane, Australia, October, 2022.

Power, R. and The Out with Cancer Study Team. Toward sexual and gender equitable cancer care for adolescents and young adults.  Invited presentation, Youth Cancer Services Communities of Practice Meeting, Brisbane, Australia, November 2022.

Ussher, JM. and The Out with Cancer Study Team. Out with Cancer: LGBTQI+ cancer survivorship and care. Invited opening plenary, COSA annual conference, Australia, November 2022.

Power, R. and The Out with Cancer Study Team. Social Justice, quality of life and cancer policy.  Invited plenary panel, NSW Cancer Conference, Sydney, Australia, September 2022.

Ussher, JM. and The Out with Cancer Study Team. LGBTQI+ cancer survivorship and care. Invited plenary panel, SPHERE conference, Australia, September 2022.

Sperring, S. Gender and sexuality diverse (GSD) women’s experiences of cancer and cancer care. Poster Presentation, NSW Cancer Conference Sydney, Australia, September 2022.

Ellis, C. “Exploring the effects of cancer on the lives of gay and bisexual men”, Poster Presentation, ID: 167, NSW Cancer Conference Sydney, Australia, September 2022.

Ussher, JM. and The Out with Cancer Study Team. Out with Cancer: LGBTQI+ cancer survivorship and care. Invited plenary, NZIMRT annual conference, New Zealand, August 2022.

Power, R. and The Out with Cancer Study Team.  Out with Cancer: LGBTQI Inclusive Health Care Practice and Policy.  ANZUP 2022 Annual Scientific Meeting, Adelaide, Australia, July 2022.

Ussher, JM., Perz, J., Power, R., Allison, K., Hawkey, AJ and The Out with Cancer Study Team.  Inclusivity, invisibility or exclusion: A discourse analytic study of health care professional, patient and carer perspectives on LGBTQI cancer care. Oral presentation, International Academy of Sex Research biennial conference, Iceland, July 2022.

Perz, J., Ussher, JM., Allison, K., Power, R. and The Out with Cancer Study Team. Out with Cancer: Minority stress, social support, sexual concerns and physical concerns predict LGBTQI cancer patients’ quality of life and distress. Poster, International Academy of Sex Research 2022 Conference, Reykjavik, Iceland, July 2022.

Ussher, JM., McDonald, F, Perz, J., Power, R., Allison, K., Patterson, P and The Out with Cancer Study Team. “Having cancer at this age, and then being queer on top, is just not really a thing”: Visibility, awareness, and experiences of care amongst young LGBTQ+ people diagnosed with cancer. Oral presentation, Fourth Global Adolescent and Young Adult Cancer Congress, London, UK, December 2021.

Ussher, JM and The Out with Cancer Study Team. Out with Cancer: LGBTQI+ cancer survivorship and care. Invited plenary, Adolescent and Young Adult Cancer Global Accord, UK, November 2021.

Ussher, JM., Perz, J., Power, R., Allison, K., MacDonald, F. and The Out with Cancer Study Team. “Having cancer at this age, and then being queer on top is just not really a thing”: Visibility, awareness, and experiences of care amongst young LGBTQ+ people diagnosed with cancer. Oral presentation, Adolescent and young adult cancer global accord, UK, November 2021

Ussher, JM. and The Out with Cancer Team. Inclusivity in cancer care: Addressing the sexual health needs of LGBTQI cancer survivors. Oral presentation, World Association of Sexual Health (WAS) conference, South Africa, September 2021.

Ussher, JM., Perz, J., Power, R., Allison, K., McDonald, F. & The Out with Cancer Study Team “I will never be put in the closet again”: Disclosure and experiences of care amongst LGBTQ+ adolescents and young adults diagnosed with cancer. In U. Sansom-Daly (Chair), Doing better at diversity and difficult discussions with young people. Symposium conducted at the 22nd World Congress of Psycho-Oncology and Psychosocial Academy, May 2021, Kyoto, Japan. Conference held online due to COVID-19

Sperring, S., Allison, KR., Power, R., Ellis, C., Ussher, JM., Perz, J., Hawkey, A. and The Out with Cancer Study Team. Gender and sexuality diverse (GSD) women’s experiences of cancer and cancer care. Oral presentation, Qualitative Health Research Network Conference, March 2021, London, UK. BMJ Open 11(Suppl 1), A11.3-A12. doi: 10.1136/bmjopen-2021-QHRN.31.  Conference held online due to COVID-19.

Power, R., Allison, KR., Ussher, JM., Perz, J., Sperring, S., Ellis, C. and The Out with Cancer Study Team. “You are at their mercy”: Disclosure and trust in LGBTQI+ cancer care. Oral presentation, Qualitative Health Research Network Conference, March 2021, London, UK. BMJ Open 11(Suppl 1), A18.1-A18. doi: 10.1136/bmjopen-2021-QHRN.49.  Conference held online due to COVID-19.

Ussher, JM., Perz, J., Power, R., Hawkey, A., Allison, KR. and The Out with Cancer Study Team. “The sweating moment” Disclosure of LGBTQI+ status in cancer care – perspectives of patients and health professionals. Oral presentation, International Society of Critical Health Psychology 12th Biennial conference, Wellington, New Zealand, 2021.

Allison, K., Power, R., Ussher, JM., Perz, J., Sperring, S., Ellis, C. and The Out with Cancer Study Team. “They never ask; I never tell”: Experiences and presentation of LGBTQ identities in cancer care. Oral presentation, Preaching to the Choir: International LGBTQ Online Conference. July 2020.

Ussher, JM (2024) Out with Cancer: LGTBQI+ cancer survivorship and care. Invited webinar, LGBTIQ+ Health Australia, January.

Ussher, JM (2023) Out with Cancer: LGTBQI+ cancer survivorship and care. Invited webinar, ANZ-Lung cancer nurses network, November.

Ussher, JM (2020) Out with Cancer: LGTBQI+ cancer survivorship and care. Illawarra Shoalhaven Local Health District webinar, September.

Ussher, JM (2023) Out with Cancer: LGTBQI+ cancer survivorship and care. Invited webinar, Cancer Council. February.

Ussher, JM (2020) Out with Cancer: LGTBQI+ cancer survivorship and care. Pink Hope Webinar, September.

Power, R. and The Out with Cancer Study Team. Unzipping the taboo, addressing sexuality and intimacy as part of cancer care.  Invited webinar, Australian Cancer Survivorship Centre, Clinical Oncology Society of Australia, Cancer Nurses Society of Australia and Cancer Council Victoria, online, September 2022.

Ussher, JM., Perz, J., Power, R., Allison, K., Hawkey, AJ. and The Out with Cancer Study Team.  Out with Cancer: LGBTQI+ cancer survivorship and care. Canteen Webinar, Australia, March 2022.

Ussher, JM., Perz, J., Power, R., Allison, K., Hawkey, AJ. and The Out with Cancer Study Team.  Out with Cancer: LGBTQI+ cancer survivorship and care. Breast Cancer Network Australia Staff Webinar, Australia, March 2022.

Ussher, JM., Perz, J., Power, R., Allison, K., Hawkey, AJ. and The Out with Cancer Study Team. Out with Cancer: LGBTQI+ cancer survivorship and care. Breast Cancer Network Australia Consumer Representatives Webinar, Australia, March 2021.

Ussher, JM. and The Out with Cancer Study Team. LGBTQI+ Health Australia Webinar: Do LGBTQI+ people with cancer have unique needs and experiences? (opens in a new window) National LGBTI Health Alliance webinar, September 2020.

Ussher, JM. and The Out with Cancer Study Team.  Out with Cancer: LGBTQI+ cancer survivorship and care. ACON webinar, June 2020.

Ussher, J., Perz, J. and Rosser, BRS. (eds). (2017) Gay and Bisexual Men Living with Prostate Cancer: From Diagnosis to Recovery. (opens in a new window) New York: Harrington Park Press.

Clarke, M., Lewin, J., Lazarakis, S. and Thompson, K. (2019) Overlooked minorities: The intersection of cancer in lesbian, gay, bisexual, transgender and/or intersex adolescents and young adults. (opens in a new window) Journal of Adolescent and Young Adult Oncology.  Early online, pp 1 - 4.

Margolies, L., and Brown, C. (2018) Current state of knowledge about cancer in lesbians, gay, bisexual, and transgender (LGBT) people. (opens in a new window) Seminars in Oncology Nursing, vol 34, no 1, pp 3 - 11.

Fish, J., Williamson, I., and Brown, J. (2019) Disclosure in lesbian, gay and bisexual cancer care: Towards a salutogenic healthcare environment. (opens in a new window) BMC Cancer, vol 19, no 678, pp 1 - 12.

Ussher, J., Perz, J., Kellett, A., Chambers, S., Latini, D., Davis, I., Rose, D., Dowsett, G. and Williams, S. (2016) 'Health-related quality of life, psychological distress, and sexual changes following prostate cancer : a comparison of gay and bisexual men with heterosexual men'. (opens in a new window) Journal of Sexual Medicine, vol 13, no 3, pp 425 - 434.

Rose, D., Ussher, J. and Perz, J. (2017), 'Let's talk about gay sex : gay and bisexual men's sexual communication with healthcare professionals after prostate cancer'. (opens in a new window) European Journal of Cancer Care, vol 26, no 1, pp 1 – 12.

Ussher, J., Perz, J., Rose, D., Dowsett, G., Chambers, S., Williams, S., Davis, I. and Latini, D. (2017) 'Threat of sexual disqualification : the consequences of erectile dysfunction and other sexual changes for gay and bisexual men with prostate cancer'. (opens in a new window) Archives of Sexual Behavior, vol 46, no 7 , pp 2043 - 2057.

Ussher, J., Perz, J., Rose, D., Kellett, A. and Dowsett, G. (2018) 'Sexual rehabilitation after prostate cancer through assistive aids : a comparison of gay/bisexual and heterosexual men'. (opens in a new window) Journal of Sex Research, pp 1 - 16.

Dowsett, G., Lyons, A., Duncan, D. and Wassersug, R. (2014) Flexibility in men's sexual practices in response to iatrogenic erectile dysfunction after prostate cancer treatment. (opens in a new window) Sexual Medicine vol 2, no 3, pp 115 - 120.

Robinson, KH., Bansel, P., Denson, N., Ovenden, G. and Davies, C. (2014) Growing Up Queer: Issues Facing Young Australians Who Are Gender Variant and Sexuality Diverse. (opens in a new window) Young and Well Cooperative Research Centre, Melbourne.

News. WSU - Study finds LGBTQI people in cancer survivorship ‘surviving discrimination by pulling together’. (opens in a new window) 20 February, 2023.

News. BCNA - BCNA launches LGBTIQ+ resources. (opens in a new window) 21 March, 2022.

Media release. Cancer Council - Landmark LGBTQI+ cancer resource released in Australia. (opens in a new window) 17 February, 2023.

Article. Lotl - Cancer Council delivers first-of-its-kind publication for people affected by cancer in Australia’s LGBTQI+ communities. (opens in a new window) 23 February, 2023.

Article. Lotl - Breast Cancer Australia Launches New Resources For The LGBTQI+ Community. (opens in a new window) 21 March, 2022.

Article. BCNA - LGBTIQ+ communities continue to face disparities of care. (opens in a new window) 23 March, 2023.

SBS News Online - Why this woman wants other LGBTIQ+ people to receive equal treatment for cancer. (opens in a new window)

SBS Radio and Podcast - Why do LGBTIQ+ people have worse cancer outcomes than other Australians? (opens in a new window)

Article: Out with Cancer: Toward LGBTQI+ inclusive cancer care.  A Little Below the Belt.  ANZUP.  2022.

Article: Young LGBTQI+ people more distressed when seeking cancer treatment due to discrimination fears. (opens in a new window) Nation World News, 22nd February 2022 by Nation World News Desk.

Article: Young LGBTQI+ people ‘significantly’ more distressed when seeking cancer treatment due to discrimination fears. (opens in a new window) iNews, February 22, 2022 by Aasma Day.

Radio Interview: Joy FM Drive show, March 21, 2022.  Announcers: Em & Warren.  Executive Producer: Con Keramitsis.

Article: Young LGBTQI+ people ‘significantly’ more distressed when seeking cancer treatment due to discrimination fears. (opens in a new window) Published: February 22, 2022 5:13 pm by Aasma Day on inews.co.uk.

Interview: Pink and Prof Jane Ussher discuss the Out with Cancer Research Study. (opens in a new window) August 23, 2021.

Podcast: Breast Cancer Australia Launches New Resources For The LGBTQI+ Community. (opens in a new window) LOTL in - health podcast, March 21, 2022.

Article: Out with Cancer: LGBTQI+ experiences of cancer survivorship and care. (opens in a new window) Oncology News, August 11, 2020.

Article: Out with Cancer study. (opens in a new window) National Rural Health Alliance.  March 10, 2020.

Article: Out with Cancer: LGBTQI+ experiences of cancer and cancer care. (opens in a new window) LOTL Magazine, November 25, 2019.