Supporting children and young people with a spinal cord injury
Supporting the transition of children and young people with a spinal cord injury from paediatric to adult healthcare services
The purpose of the study is to develop support for young people with a spinal cord injury (SCI) who are moving from paediatric to adult healthcare services. The specific objectives are to:
- Understand the experience of healthcare transition for young people with SCI and their parents/caregivers.
- Explore the current healthcare transition needs of young people with SCI.
- Co-design and develop healthcare transition support resources and tools for young people with SCI.
- Evaluate the acceptability and feasibility of the healthcare transition support resources and tools in supporting the transition process.
The study is targeted at young people (age 14- 25) with a SCI and their parents/caregivers. These young people will either be looking to transition in the next few years or will have transitioned in the last few years.
- Emily Bray
- Associate Professor Lucie Ramjan
- Associate Professor Ajesh George
- Associate Professor Bronwyn Everett
- Professor Yenna Salamonson
What does participation in this research involve?
Participation includes an interview (or upon request a paired interview) that aims to explore the experiences, needs, and expectations regarding healthcare transition and the transfer to adult health services. The interview will be conducted via telephone or video-conference and will take approximately 30-45 minutes.
Following this, participants will take part in a co-design workshop to co-develop a healthcare transition support tool or resource. The workshop will be held in person at the Northcott offices/Western Sydney University or via video-conference and will run for 60-90 minutes.
After the tool or resource has been developed, participants will be asked to provide feedback on the developed healthcare transition support tool or resource. This will occur in a 60-minute online video-conference focus group.
Lastly, following a period of use, participants will evaluate the tool or resource. The evaluation will consist of a 15-minute interview conducted via telephone or video-conference.
- Project website (opens in a new window)
For further information, please contact Emily Bray
Human Research Ethics Committee approval number: H14029