About the Out with Cancer Study
We want to know about LGBTQI+ experiences of cancer and cancer care.
LGBTQI+ includes people who are lesbian, gay, bisexual, transgender, queer, born with a variation in sex characteristics (intersex variation), and those who identify with other descriptor terms used in our communities.
We are interested in LGBTQI+ experiences of cancer and cancer care, and medical intervention to reduce cancer risk.
Partner(s), family members and friends
We want to hear from the partners, family members and friends of LGBTQI+ people with cancer, as well as LGBTQI+ people who have cared for someone with cancer (15y+).
Take our online survey (20 to 45 mins) with the option of a follow-up interview to discuss your experiences in more depth. You can also take part in a further photo interview, using photos taken by you. We will use this information to develop better information and support for LGBTQI+ people with cancer and their carers.
Healthcare professionals working in cancer medicine and cancer care
We want to hear from healthcare professionals working in cancer medicine and cancer care. We will ask about your knowledge and experiences of working with LGBTQI+ people with cancer and their carers. Take our confidential online survey (10 to 15 mins) with the option of a follow-up interview to discuss these issues in more depth.
Why We Need Your Help
LGBTQI+ communities represent an “ignored epidemic” and a “growing and medically underserved population” in cancer care.
Previous research suggests LGBTQI+ communities experience a disproportionate cancer burden, and face unique psychosocial challenges, such as higher rates of cancer related distress and sexual concerns, lower levels of family support, difficulties in accessing general health care or cancer services, gaps in patient provider communication and lower satisfaction with cancer care.
“Research is needed to understand these disparities and the complexity of LGBTI+ experience of survivorship across tumour streams, from diagnosis through to palliative care.”
Recently, the American Society of Clinical Oncology recognised this health disparity and concluded there is “insufficient knowledge about the health care needs, outcomes, lived experiences and effective interventions to improve outcomes” for LGBTQI+ populations. As a result, health care providers and policy makers are ill-equipped to provide culturally-competent advice or assistance to LGBTQI+ cancer survivors and their families.
This is an Australian Research Council Linkage Grant funded project. This study has been approved by the Western Sydney University Human Research Ethics Committee. The Approval number is H12664.
If you are experiencing distress related to your involvement in this study, or would like to talk to someone about being LGBTQI+ and/or your cancer experience, please click here for support services that may be helpful to you.