Researchers create a digital story of dying at home

Researchers at the University of Western Sydney have created a heartfelt digital story that explores the way that family, friends and the community come together to care.

Last week in Grafton was developed as a means of capturing the unique nature of ‘Caring at End of Life’ – an innovative research project that is concerned with the needs and experiences of people who are supporting loved ones to die at home.

The Caring at End of Life team, based within the UWS School of Social Sciences and Psychology, have conducted focus groups and interviews with carers throughout NSW and have invited carers to take photos of their caring experiences. Some of these stories and photos are featured in the digital story.

The researchers are interested in continuing the study and hearing the experiences of more friends, family members, neighbours, work mates, service providers or community members, who may have assisted in someone’s journey of dying at home.

Interested participants can contact the research team on 02 4736 0368 or at

The research project is being conducted by Associate Professor Debbie Horsfall from the University of Western Sydney, in partnership with Dr John Rosenberg from Calvary Centre for Palliative Care Research ACT, Associate Professor Rosemary Leonard from CSIRO and Ms Gillian Batt from Cancer Council NSW.

This project is funded by the Australian Research Council in partnership with Cancer Council NSW and has been approved by the University of Western Sydney Human Research Ethics Committee (approval number H9255).


31 January 2013

Contact: Danielle Roddick, Senior Media Officer